Yesterday, we wore green. Today, we wear purple, in honor of Trisomy 18 awareness day. Trisomy 18 is a replication error resulting in 3 strands of the 18th chromosome instead of the proper 2. This interferes with the development of a baby and can manifest in many ways. Our second son, Toban Josiah, has a particularly severe case, the most striking problem being that his chest never fully formed, leaving his heart outside of his body. If he lives through delivery, he is not expected to live long after birth. This is the sad fact of Trisomy 18 babies. Not many survive to birth. Of those that do, only 10% live past the first year.
I bring this up to say this: My heart goes out to anyone who has experienced a Trisomy 18 diagnosis. Even a mild case is not an easy path to walk, and the decisions that have to be made can be heartbreaking.
Also, thanks to the medical community and the advances of modern technology, we've been able to see our baby alive and moving on ultrasound, something we may not get to experience after he's born. A thing we almost took for granted with our first son has become our most precious gift with our second.
Edited by haywire, 19 March 2020 - 07:14 AM.